This afternoon, Dad woke up gasping again for breath and in fear asked to go back to the Emergency Room. Mom was there and they did a breathing treatment together. The Nurse Rebecca and also the social worker Ann and also another nurse had been there already today to check on him and on mom. They discussed taking dad to the Hospice House, but this was before the emergency request from dad. I got to the house and mom and I decided let's go ahead and take him to the Hospice House. We felt we had his pain under control, but his fear was not under control, and that they would have better means of caring for him and keeping him assured there. (Of course with us being there with him)
So we got Ann and Rebecca, they came back to the house. They are very sweet and awesome caring women. Taking care of all of us along the way. Got the call to take us to the Hospice House. The only catch was, it is in Sun City Center. (ruskin) So the transport took no time in arriving. Mom rode along with them to make sure everything was alright, and Anna Jeff, Ryan, and myself followed shortly after we gathered all our belongings and some of dads. We arrived in Sun City Center Hospice this evening around 5ish?? Maybe later... And got settled in. The building is awesome just like the one in Temple Terrace.
The first nurse we met with was not very personable. She was ready to go off shift. (and we could tell) While filling out paperwork, Dad had a wheezy coughing spell and she didnt even get up to see what was going on. Of course all of us are around him trying to help, and he was just coughing badly, asking for help. So mom asked the nurse to get up and come check on him which she seemed to do with much reluctance. She said his lungs sounded fine. His coughing stopped on his own. Thanks for nothing.
After the shift change, there were a few nurses and aids in and out of the room but nothing serious. Until it was time for his Atavan (which is his anti-anxiety medicine). When it comes to this stage of dying a patient can become extremely anxious, fearful, not know what is going on. THAT IS WHY WE ARE HERE. So the nurse barges in the room with this syringe full of his medicine, hollering the whole time, "I'VE GOT YOUR MEDICINE, HERE WE ARE, BLAH BLAH, HERE WE GO, TIME TO TAKE THE MEDICINE" like at the top of her loud football cheering voice. And heads straight for his head and would have jammed the syringe in his mouth and probably out the other side of his head, had he not fought her off. Oh yes, and for those of you who have seen dad in the last week, you know he can barely move his arms. He was awaken from a dead sleep, now panicking, flailing his arms in front of him AND ALL THE WHILE SHE IS STILL TRYING TO GET THIS MEDICINE IN HIS MOUTH. Of course we are all right there frozen in shock and disbelief, when I speak up and say something like, you have to be gentle and quiet. And mom jumped right in and said this is not going to work... and she went on to help him and the nurse get the meds taken. When the nurse barged out, we were all kind of standing there shocked now, and dad is all shaken up. Anger!! You have no idea. So mom goes out and speaks with the nurse about how that just completely upset her whole family and especially the patient. And how that is unnacceptable, and how she has read the Hospice manual and you are supposed to enter and come at a patient with gentleness and concern. Not boisterous hollering. And as mom was coming back to the room, I was walking out and they did not know, and as I walked by they were all kind of mocking us. Basically giving a major attitude like they had done nothing wrong.
Soooo Mom got on the phone for about half an hour to 45 minutes and got like the head of Hospice on the phone after about 7 phone calls, and completely told all of them about ALL of the unpleasant people we have dealt with....
OH YEAH and the other big thing is while mom is on the phone complaining, Dad is in the room asking to GO HOME!! :(..
And we are all like we were doing better at home with a 24 hour care person than here with this crap! So finally the head person asked mom, what can we do to make you happy, and she said move us out of this wing and into another room in another hall without having to move him from his bed. AND THAT IS WHAT HAPPENED.
We are now in a new hall with very pleasant gentle nurses and aids. (who I am sure have been warned about us) but that's fine, cause they have been like a million percent better.
And now Dad, Mom, and Doug are all sleeping in beds, and recliners, and I am about to go to sleep in my recliner. :)
UPDATE ON TIME: We do not expect Dad to make it through the week. We know nothing for sure. The social worker today said that he was fighting it tooth and nail. And asked if we had talked to him about it being ok to go. We haven't really but we may do that tomorrow. His beautiful plot is waiting for him to rest.
Going to do funeral plans tomorrow. (Thats where I was when I got the call to come help with all of this) :)
Love yall! Thanks for your love and support. Feel Free to leave comments on this!
Good night!